This event is supported by NIH funded iDASH, PCORI funded pSCANNER, and the Department of Biomedical Informatics at UCSD.
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pSCANNER and iDASH Data Sharing Symposium
Dates: September 30-October 2, 2015
Location: Atkinson Hall, UCSD Campus, La Jolla, California.
Directions: Driving and walking directions to the meeting from nearby hotels can be found here.
Objective: The symposium aims to bring together clinicians, scientists, and funding agency representatives with an interest in integrating, analyzing, and sharing health data for research. Keynote talks, investigator presentations, and panel discussions on current research and technologies will be related to two projects within the Department of Biomedical Informatics—iDASH (funded by NIH) and pSCANNER (funded by PCORI).
Agenda:
Wednesday, Sept. 30th: pSCANNER presentations
Thursday, Oct. 1st: pSCANNER and iDASH discussions
Friday, Oct. 2nd: iDASH presentations
Contact:
If you have any questions or concerns, please contact Rita Kurtz at pscanner@ucsd.edu
Detailed Agenda:
Wednesday, September 30 (Day 1)
| 8:30 AM |
Breakfast and Registration
|
|
| 9:00 AM |
Welcome and Introduction to pSCANNER Phase I Accomplishments
Lucila Ohno-Machado, MD, PhD
University of California San Diego |
|
| 9:20 AM |
Keynote: PCOR, PCORI, PCORnet: Oh My! |
View Video View PDF |
| 10:00 AM |
Phase I Infrastructure and Analysis-ready Data
Daniella Meeker, PhD University of Southern California |
|
| 10:15 AM |
Break |
|
| 10:30 AM |
An update on the integration of distributed analytics of pScanner and the POPMedNet Client
Michael Matheny, MD, MPH
Vanderbilt University
|
View Video View PDF |
| 10:50 AM |
Demonstration of the Portal
Daniella Meeker, PhD
University of Southern California |
View Video |
| 11:00 AM | Panel: Natural Language Processing Scott DuVall, PhD (Department of Veterans Affairs, University of Utah) Chun-Nan Hsu, PhD (UCSD) Michael Matheny, MD, MPH (Vanderbilt) Hua Xu, PhD (UT Houston) |
|
| 11:30 AM |
Joint Talk: Phase II New Data Partners
Anish Mahajan, MD, MS, MPH (Los Angeles County Department of Health Services) Lorrie Sheets (San Mateo Health System) Spencer SooHoo, PhD (Cedars-Sinai Medical Center) Adam Wilcox, PhD (Intermountain Healthcare) |
View Video View PDF Sheets Mahajan SooHoo Wilcox |
| 12:00 PM |
Lunch and Breakout Meetings
|
|
| 1:30 PM |
CDRN Learnings and Applications for Identity Management & Data Quality
Lisa Schilling, MD, MSPH
University of Colorado Denver |
View Video View PDF |
| 1:50 PM |
Privacy Preserving Nonparametric Tests of Differences Between Groups for Comparative Effectiveness Research
Jason Doctor, PhD University of Southern California |
View Video View PDF |
| 2:10 PM |
Scalable Patient and Stakeholder Engagement: pSCANNER Phase I Research Prioritization |
|
| 2:35 PM |
Break
|
|
| 2:55 PM |
Collaborations with CTSA Initiatives (UC ReX and ACT) |
View Video View PDF |
| 3:10 PM | pSCANNER Collaborations with Patient-Powered Research Networks
Cleo Maehara, MD
University of California San Diego |
View Video View PDF |
| 3:25 PM |
PRIDEnet: Utilizing Technology to Engage Sexual and Gender Minorities in Clinical Research
Mitchell R. Lunn, MD
University of California San Francisco |
View Video View PDF |
| 3:40 PM |
CCFA Partners |
View Video View PDF |
| 3:55 PM |
Multiple Sclerosis PPRN, iConquerMS |
View Video View PDF |
| 4:10 PM |
Optional Visit of the Division of Biomedical Informatics |
Thursday, October 1 (Day 2)
| 8:30 AM |
Breakfast and Registration
|
|
| 9:00 AM |
Welcome and Overview of iDASH
Lucila Ohno-Machado, MD, PhD
University of California San Diego |
|
| 9:20 AM |
Keynote: Data Governance in Large-scale Biomedical Research: Tools, Methods, and Policy Goals
Pilar Ossorio, PhD, JD
University of Wisconsin Law School
|
View Video View PDF |
| 10:00 AM |
Human Genome Privacy in a Hybrid Cloud (linked R01)
Xiaofeng Wang, PhD Indiana University
|
|
| 10:15 AM |
Break |
|
| 10:30 AM |
Leveraging Randomness in Structure to Enable Efficient Distributed Data Analytics
Jaideep Vaidya, PhD
Rutgers University
|
View Video View PDF |
| 10:45 AM |
Collaborative Research with Tribal Partners: Experience from a Regional Food Security Partnership |
View Video View PDF |
| 11:05 AM |
Engagement for Study Design and Dissemination: Improving Behavioral Health Focused EHR Health Communication with Stakeholders |
|
| 11:25 AM |
IRB Streamlining
Carl Stepnowsky, PhD
VA San Diego Healthcare System |
View Video View PDF |
| 11:40 AM |
Informed Governance: A Framework for Adaptive Information Policy |
View Video View PDF |
| 12:00 PM |
Lunch
|
|
| 1:00 PM |
Keynote: Data from Life’s Unavoidable Events - California’s Birth and Death Registries
Michael Hogarth, MD
University of California Davis
|
|
| 1:30 PM | SHARE: Statistical Health Information Release with Differential Privacy (Linked R01) and Building Patient-Centered Privacy Preserving Data Registries (PCORI Funded Project) Li Xiong, PhD Emory University |
View Video View PDF |
| 1:50 PM |
Cloud-Assisted Distributed Private Data Sharing |
|
| 2:10 PM |
Break
|
|
| 2:30 PM |
Panel: Legal and Ethical Issues in Genome Privacy |
View Video |
| 3:30 PM | CYCORE: Cyberinfrastructure for Cancer Comparative Effectiveness Research (Linked R01) Emilia Farcas, PhD University of California San Diego |
View Video View PDF |
| 3:45 PM | The Cardiac Atlas Project (Linked R01) Andrew McCulloch, PhD University of California San Diego |
|
| 4:00 PM | Infrastructure to Host Sensitive Data: HIPAA Cloud Storage and Compute Anthony Koures, PhD, Claudiu Farcas, PhD, and Olivier Harismendy, PhD University of California San Diego |
View Video View PDF |
| 4:30 PM | Day End |
Friday, October 2 (Day 3)
| 8:30 AM |
Breakfast and Registration
|
|
| 9:00 AM |
Introduction to Driving Biological Projects
Lucila Ohno-Machado, MD, PhD
University of California San Diego |
View Video View PDF |
| 9:10 AM |
Privacy Preserving Shared Access to Computing on Sensitive Data: A Feasibility Study (DBP7)
Shuang Wang, PhD
University of California San Diego |
View Video View PDF |
| 9:30 AM |
Privacy Preserving Analytics for Kawasaki Disease in African-Americans (DBP4)
Jane Burns, MD and Jihoon Kim
University of California San Diego
|
View Video View PDF |
| 9:50 AM |
Partnership for Epidemiological Research in Hispanic/Latinos (DBP 5)
Gregory Talavera, MD, MPH
San Diego State University |
View Video View PDF |
| 10:10 AM |
Break
|
|
| 10:20 AM |
informed CONsent for Clinical data and sample Use for Research (iCONCUR)
Hyeoneui Kim, RN, PhD
University of California San Diego
|
View Video View PDF |
| 10:40 AM |
Informed Consent for Biospecimen Collection and Data Sharing Among Low-income, Uninsured and Underinsured Women: Is it a Matter of Trust? (DBP 6)
Ian Komenaka, MD (Maricopa Medical Center)
Presented by: Elena Martinez, PhD (UC San Diego)
|
View Video View PDF |
| 11:00 AM |
Keynote: Bringing Big Data to the Bedside |
|
| 11:40 AM | Closing Remarks Lucila Ohno-Machado, MD, PhD University of California San Diego |
View Video View PDF |
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