pSCANNER Year 3 Face-to-Face

Date: November 29, 2017

Location: University of California, San Diego, Health Sciences Biomedical Research Facility II Room 5A03

Contact: If you have any questions or concerns, please contact Emily Guardado at pscanner@ucsd.edu

Directions: Driving and walking directions to the meeting from nearby hotels can be found here.

Research Co-Design Team (Kawasaki Disease) Member Bios

pSCANNER Kawasaki Disease Research Co-Design Team

Funded Study: A Stakeholder-Driven Comparative Effectiveness Study of Treatments to Prevent Coronary Artery Damage in Patients with Resistant Kawasaki Disease

 

Principal Investigator:

Natural Language Processing

The pSCANNER Natural Language Processing (NLP) working group develops capacity to enable sharing and reuse of vast amounts of valuable health information derived from clinical texts of all pSCANNER participating institutes. Specifically, this involves creating generalizable and scalable NLP tools to extract phenotypes of the three use case conditions (i.e., Congestive Heart Failure, Obesity and Weight Management, and Kawasaki Disease) and store the results as a data warehouse of patient phenotypes in OMOP NLP schema proposed by the OHDSI NLP working group ready to support clinical studies. 

Research Co-Design Team (Weight Management) Member Bios

Romona Allen (Koren), Patient Representative: Ms. Koren is a patient stakeholder representing a SAFTNet clinic partner from Colorado.  She has worked for a number of years with the University of Colorado on a diabetes peer support project, is a member of the pSCANNER Stakeholder Advisory Board, and welcomes the opportunity to help other patients in a way that leads to better health.

 

Research Co-Design Team (Heart Failure) Member Bios

Susan Ammon, Clinician:  Ms. Ammon worked as a nurse practitioner in the General Cardiology and Heart Failure Clinic at the San Francisco Veterans Affairs Medical Center. This past November 2016, she retired from her position after 34 years of service but continues to be involved in several heart failure committees/board positions.  She participated in Phase I of pSCANNER on the research prioritization panel for heart failure.

Stakeholder Boards

Stakeholder Advisory Board – Governance: The main objective of pSCANNER’s Stakeholder Advisory Board (SAB) is to provide input and guidance for active, meaningful and consequential participation of stakeholders, including patients, patient advocates, clinicians, researchers and health system administrators, in pSCANNER activities.  SAB member biographies are available here

 

Presentations

 

Please make sure that all publications/communication/media pieces from pSCANNER contain the following acknowledgement of PCORI funding and required disclaimer:

Presentations

  • Big Data at UC and Beyond: Unleashing the Power of Clinical Data for Research. Workshop on Predictive Analytics, The Advisory Board Company. February 26, 2014.
  • Keynote Speaker: Big Data at UC and Beyond: Unleashing the Power of Clinical Data for Research, Big Data to Knowledge Symposium, UCLA. March 27, 2014.
  • Distinguished Lecturer, Privacy-Preserving Data Sharing, Department of Computer Science, Hong Kong Baptist University. April 9, 2014.

pSCANNER 2016 All Hands Symposium

Date: October 13, 2016

Location: Atkinson Hall, UCSD Campus, La Jolla, California.

Contact: If you have any questions or concerns, please contact Rita Kurtz at pscanner@ucsd.edu

Directions: Driving and walking directions to the meeting from nearby hotels can be found here.